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Public Involvement in Health Research

Public Involvement in Research

"No matter how complicated the research, or how brilliant the researcher, patients and the public always offer unique, invaluable insights. Their advice when designing, implementing and evaluating research invariably makes studies more effective, more credible and often more cost efficient as well."  Professor Dame Sally Davies, Chief Medical Officer.

Members of the public can often bring a fresh perspective to research. There have been occasions when members of the public have identified areas of research that have not previously been considered by those close to the research.

Public involvement in research includes:

  • being able to ensure that important issues are identified and providing a patient-perspective on care and research
  • making the language and content of information provided more appropriate and accessible (for example in questionnaires, and patient/participant information leaflets for clinical trials)
  • helping to ensure that the methods proposed for the study are acceptable and sensitive to the situations of potential research participants
  • helping to ensure that research uses outcomes that are important to the public
  • Encouraging and supporting patients to participate in research by – making the research more appropriate and acceptable to potential participants – improving the information provided so people can make informed choices – helping to include seldom heard groups.
  • suggesting ideas for new research areas
  • ensuring research is focused on the public’s interests and concerns and that money and resources are used efficiently
  • helping to reshape and clarify the research.
  • ensuring that new technologies are acceptable to the public
  • disseminating results of research and supporting the implementation of research outcomes for patient benefit
  • ensuring that the changes are implemented.

If you are interested in with clinical research at Derriford Hospital please e-mail plh-tr.researchppiaccount@nhs.net for more information.

Alternatively, the INVOLVE website can provide more information on helping in research.

INVOLVE have produced a Public Information Pack (PIP) which comprises 4 booklets, for members of the public interested in becoming involved in research. (Include links to booklets here)

Useful Contacts
INVOLVE is a national advisory group, funded by the National Institute for Health Research (NIHR).  Its role is to support and promote active public involvement in NHS, public health and social care research.”

INVOLVE Support Unit
Wessex House
Upper Market Street
SO50 9FD

Telephone: 023 8065 1088
Email: admin@invo.org.uk

Folk.us brings the world of research and researching to people who use health or social care services across Devon.

People in Research aims to help members of the public make contact with organisations which want actively to involve people in clinical research.

UK Clinical Research Collaboration
20 Park Crescent

Email: peopleinresearch@ukcrc.org

The UK Clinical Research Collaboration site gives information on public involvement in research and booklets can be downloaded giving further information http://www.ukcrc.org/patients-and-public/patient-and-public-involvement-in-clinical-research/ .

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